TAKE
ACTION
Save our support Systems. Save our Science. Save our Society.
WATCH PROTEST LIVESTREAM
ME/CFS, Long COVID, and other disability communities joined together at the U.S. Capitol on May 12th, 2025 to send a SOS signal to Congress: Save our Social Supports. Save our Science. Save our Society.
#MEAction organized the protest to call on Congress to protect the basic infrastructures that support our communities: Medicaid, home care support, research funding and open science. Healthcare, research funding and disability were already incredibly fragile for our communities and now we are at risk of losing everything. We cannot let our ship sink. It’s time to send out our SOS signal. #MEAction encourages all people with disabilities to join this fight.
HEAR FROM THE MILLIONS MISSING
Perhaps the largest presence felt at any of these events is that of the ones that couldn't be there. This year, we asked our community to send in photos along with a few words of their own story to represent them in their absence. This is what they sent.
May 12th is Myalgic Encephalomyelitis (ME) Awareness Day. On this day, the millions of people with ME (#MillionsMissing) gather to demand recognition, research and clinical care for people with ME, also known as ME/CFS.